About Us

What is Living with Raynaud’s Disease Patient Community?

Living with Raynaud’s Disease is a dedicated patient-to-patient support community for families affected by Raynaud’s Disease. Raynaud’s Disease Patients Support Community is powered by BensFriends.org, a network of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Raynaud’s Disease.

Who can join Living with Raynaud’s Disease?

If your family has been affected by Raynaud’s Disease, consider Living with Raynaud’s Disease your second home. Living with Raynaud’s Disease, as well as the rest of BensFriends.org’s patient communities, is free for members to join.

What is Raynaud’s Disease?

Raynaud’s Disease (RD), also called Raynaud’s phenomenon, is a condition of the cardiovascular system in which the blood vessels contract, restricting the flow of blood, usually in the hands, feet or both. RD occurs in up to one-third of individuals with lupus.

Lupus-related Raynaud’s usually results from inflammation of nerves or blood vessels and is triggered by stress or by cold temperatures. With Raynaud’s, the tips of the fingers or toes turn red, white, blue or purple. This may be accompanied by pain, numbness, or tingling. The lips, nose and chin may also be affected. The skin may return to a reddish color when warmth allows blood flow to return to the site.

What is BensFriends.org?

In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.

BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.

You can learn more about BensFriends.org at http://www.bensfriends.org or watch one of our videos at http://www.youtube.com/BensFriendsVideos.